Influencing of family management in families with thalassemic children on health related quality of life and family functioning: SEM approach

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dc.contributor.authorOrranuch Chusri
dc.contributor.authorWannee Deoisres
dc.contributor.authorMarcia van RIPER
dc.contributor.correspondenceW. Deoisres; Faculty of Nursing, Burapha University, Chon Buri, 20130, Thailand; email: wannee@buu.ac.th
dc.date.accessioned2025-03-10T07:36:31Z
dc.date.available2025-03-10T07:36:31Z
dc.date.issued2019
dc.description.abstractPurpose: To predicate the way in which families incorporate the work of managing a child with thalassemia within family life and its outcomes. Methods: A correlational design with a structural equation modeling (SEM) approach was used. A total of 309 parents of children with thalassemia from 4 tertiary care hospitals in Thailand completed our questionnaires. Results: Family life difficulties had a negative influence on the child�s health-related quality of life (HRQOL) (_ = _2.23, p < 0.05) and family functioning (_ = _0.27, p < 0.05), whereas the child�s daily life (_ = 5.06, p < 0.05) and condition management ability (_ = _1.86, p < 0.05) had a negative influence on the child�s HRQOL. In the final model, 3 variables including the child�s daily life, condition management ability, and family life difficulty could explain 33 % of variance in the child�s HRQOL (R2 = 0.33). This model showed that only family life difficulty could explain 2 % of variance of family functioning (R2 = 0.02). Conclusions: The study suggests that nurses should design interventions to support families in managing their child�s conditions in order to achieve a good child and family outcomes. � 2018, Walailak University. All rights reserved.
dc.identifier.citationWalailak Journal of Science and Technology
dc.identifier.issn16863933
dc.identifier.scopus2-s2.0-85056382371
dc.identifier.urihttps://repository.dusit.ac.th//handle/123456789/4898
dc.languageEnglish
dc.publisherWalailak University
dc.rights.holderScopus
dc.subjectChildren with thalassemia
dc.subjectFamily functioning
dc.subjectFamily management
dc.subjectHealth related quality of life
dc.subjectParental perception
dc.titleInfluencing of family management in families with thalassemic children on health related quality of life and family functioning: SEM approach
dc.typeArticle
mods.location.urlhttps://www.scopus.com/inward/record.uri?eid=2-s2.0-85056382371&partnerID=40&md5=80f94d3849fd9f6305985a030b426a13
oaire.citation.endPage38
oaire.citation.issue1
oaire.citation.startPage27
oaire.citation.volume16
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